DEI-A

This post is the final entry in our series about the use of race and ethnicity in population health research. Our previous posts have detailed information around defining, measuring, coding, and analyzing data on race and ethnicity.

For states to move toward antiracist, equitable, and inclusive policies that build an economic recovery that extends to all people, three principles should guide state policymakers in these equity efforts.

At the root of structural issues is powerlessness. This primer examines how health equity can be achieved through a community power-building approach to structural change.

This work seeks to shift awareness and practice by centering racial equity and community voice within the context of data integration and use that supports power sharing and building across agencies and community members.

Yeshimabeit Milner, founder and executive director of Data for Black Lives, calls for rejecting the concentration of Big Data in the hands of a few to challenge the structures that allow data to be wielded as a weapon of immense political influence.

This resource is the updated, digital version of A Guide to Planning Accessible Meetings, originally published by Independent Living Research Utilization in 1993, written by co?-authors June Isaacson Kailes and Darrell Jones. This version includes regulatory updates along with practical guidance from a host of meeting planning professionals, subject matter experts, and even June Kailes herself.

Designed for physicians and other health care professionals, this document provides guidance and promotes a deeper understanding of equity-focused, person-first language and why it matters.

The goal of this accessibility resource page is to provide information and resources on how to create and maintain an inclusive environment that is accessible to those with disabilities.

This article highlights synergies between antiracist principles and community-based participatory research (CBPR), examines the potential for CBPR to promote antiracist research and praxis, illustrates structural barriers to antiracist CBPR praxis, and offers examples of CBPR actions taken to disrupt structural racism. It also provides recommendations for the next generation of antiracist CBPR.

To unlock the full potential of data, researchers and analysts must consider and apply equity at every step of the research process. Ensuring responsible data collection, representing the communities surveyed accurately, and incorporating community input whenever possible will lead to more equitable data analyses and visualizations. Although there is no one-size-fits-all approach to working with data, for researchers to truly do no harm, they must build their work on a foundation of empathy. This article details three ways you can make your data analysis and communication more equitable and inclusive.

While each organization will follow its own path towards a Race Equity Culture, our research suggests that all organizations go through a cycle of change as they transform from a white dominant culture to a Race Equity Culture.

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In this essay, two women of Color researchers examine the intersections of race and disability and ask, ?What is the power and purpose of positioning and positionality statements?? Informed by Black feminist theory, and drawing from the DisCrit tenets of intersectional oppressions, historicity, and whiteness and ability as property, the authors focus on researchers? positioning in relation to how they engage and communicate knowledge about multiply marginalized people.

Christopher F. Koller, President of the Milbank Memorial Fund, Lillie Tyson Head, President of VFOFLF, and Pamela Browner White, Chief Diversity, Equity and Inclusion Officer and Senior Vice President of Communications at the American Board of Internal Medicine and the ABIM Foundation, spoke about the importance of building trust by acknowledging past harm, committing to do better, and partnering for the long term to improve trust in the health system.

Increasing the accessibility of public and patient involvement (PPI) in health research for people from diverse backgrounds is important for ensuring all voices are heard and represented.

This guide was developed in response to librarians fielding multiple requests from UMN researchers looking to incorporate anti-racism into their research practices. This guide shares racist research systems and practices, followed by resources for mitigating those problematic systems and practices, but we wholeheartedly acknowledge that this guide is not a “solution” to the issues of racism embedded in research.

This resources is a checklist for those hosting in-person conferences to ensure they are accessible to people with different types of disabilities. Each item provides additional context that may be helpful in making the venue more accessible.

Racial and ethnic disparities figure prominently intomuch of the analysis conducted by
policy research organizations in the US. But too often our organizations give short shrift to
the centuries of subjugation, discrimination, exclusion, and injustice that have produced
these inequities.

Kimberle Crenshaw invites Barbara Arnwine, Camara Phyllis Jones, Jonathan Metzl, and Keeanga-Yamahtta Taylor to ask: What has become of the supposed reckoning with white supremacy since George Floyd?s death?

Drawing on field experience and scientific literature, we explore the connection between citizen science and Indigenous local knowledge and demonstrate approaches for how citizen science can generate useful knowledge while at the same time strengthening Indigenous local knowledge systems.

This article provides fourstrategies for how individuals and institutions can engage in anti-racism allyship: (1) be an upstander duringmicroaggressions, (2) be a sponsor and advocate for physicians of color, (3) acknowledge academic titles andaccomplishments, and (4) challenge the idea of a ??standard fit?? for academic faculty and research. Skills in aca-demic allyship should be taught toallphysicians throughout the educational continuum to mitigate feelings ofisolation that racialized minority physicians frequently experience.

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This style guide, which covers dozens of words and terms commonly used when referring to disability, can help journalists and other communicators to figure out how to refer to people with disabilities.

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To challenge our personal & professional ableist biases & practices, we must reframe how we think about disability in higher education, & work not just for access but for equity & inclusion for disabled students.

This publication presents the final recommendations of an external advisory group AcademyHealth convened to help shape a sustainable, action-oriented strategy to address diversity, equity, & inclusion in the field

For this follow-up volume, Do No Harm Guide: Additional Perspectives on Data Equity, we handed the pen to data experts and practitioners whose voices have been traditionally underrepresented.

In this guide and its associated toolkits, we focus on how data practitioners can approach their work through a lens of diversity, equity, and inclusion to encourage thoughtfulness in how analysts work with and present their data.

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The philanthropic & nonprofit fields, organizations & individuals have shown an increasing focus on equity. This booklet shares five scenarios around equity in which we?ve had to clarify our role & form an appropriate response.

This article examines what it means to use equity as a guiding principle throughout the components and functions of a modern public health data system.

The ACGME Equity Matters Video Library houses all the individual components of the ACGME Equity Matters curriculum and is accessible to anyone in the medical education community. No CME credit is provided for completion of the library?s resources. To ensure a safe environment, it is recommended that organizations using these videos show them under the proper guidance of a trained facilitator for large viewings.

This guidance is meant to facilitate conversations between researchers and patient partners about authorship and/or acknowledgement regarding research projects on which they collaborate.

The Guidelines on Inclusive Language came together due to the growing need for more comprehensive and global guidelines to help authors, editors, and reviewers recognize the use of language and images that are inclusive and culturally sensitive.

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This article examines the health disparities experienced by transgender people with disabilities. It analyzes the prevalence and types of disabilities among transgender people, examines the health outcomes and social determinants of health among this intersectional population, and makes recommendations for areas of future research.

This resource is intended to provide state policymakers with a suite of state approaches to address health disparities ? from targeted to cross-agency comprehensive strategies. Each section below comprises best practices and state
examples from a geographically diverse set of states to guide state policymakers to the opportunity that best suits their states? needs and capacity. Also included is a lexicon, recognizing the importance of common definitions in this domain, along with links to key tools and resources.

This expert roundtable focuses on how the COVID-19 pandemic brought to light the serious and pervasive data gaps facing marginalized groups and what cross-cutting themes the panels found in their work.

This study discusses three ways in which implementation science can inform efforts to address disparities in COVID deaths: (1) quantify and understand disparities; (2) design equitable interventions; and (3) test, refine, and retest interventions

This tool describes how to conduct intensive equity assessments of existing programs, policies, and processes. The tool first describes the scoping work that needs to be done before conducting an equity assessment and then describes and provides guiding questions for each of the six steps in the in-depth equity assessment process.

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This resource defines intersectionality and describes its manifestations in education. It also offers strategies for addressing implicit biases in Integrated Co-Teaching (ICT) classrooms and provides a list of anti-racist and intersectionality resources for educators.

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This Horizon Scan provides an overview of existing DEI programs and practices to ultimately stimulate conversations and action that can advance DEI within health services and policy research.

This commentary uses Black Feminism and Womanism (BFW) as epistemologies to critically address Black women’s health policy, building on the legacy of Black women’s experiences, theories, & knowledge production.

Objective: To describe the perception of professional climate in health services and policy research (HSPR) and efforts to advance diversity, equity, and inclusion (DEI) in the HSPR workforce and workplaces.Data source: We administered the HSPR Workplace Culture Survey online to health services and policy researchers. Study design: Our survey examined participants’ sociodemographic, educational, and professional backgrounds, their perception on DEI in HSPR, experience with DEI initiatives, feeling of inclusion, and direct and witnessed experiences of discrimination at their institutions/organizations. We calculated sample proportions of responses by gender identity, sexual orientation, race/ethnicity, and disability status and compared them with Fisher’s exact test. Data collection: We administered the survey online from July 28 to September 4, 2020. HSPR professionals and trainees aged 18 and older were eligible to participate. Analyses used complete cases only (n = 906; 70.6% completion rate). Principal findings: 53.4% of the participants did not believe that the current workforce reflects the diversity of communities impacted by HSPR. Although most participants have witnessed various DEI initiatives at their institutions/organizations, nearly 40% characterized these initiatives as “tokenistic.” Larger proportions of participants who identified as female, LGBQI+, underrepresented racial/ethnic groups, and those with a disability held this perception than their male, heterosexual, White, and non-disabled counterparts. Current DEI initiatives focused on “planning” activities (e.g., convening task forces) rather than “implementation” activities (e.g., establishing mentoring or network programs). 43.7% of the participants felt supported on their career development, while female, Black, Hispanic/Latino, LGBQI+ participants and those with a disability experienced discrimination at their workplace. Conclusions: Despite an increasing commitment to increasing the diversity of the HSPR workforce and improving equity and inclusion in the HSPR workplace, our results suggest that there is more work to be done to achieve such goals.

This resource has easy-to-use, practical resources on how to make meetings and events more inclusive.

The Pulse Check is not a downloadable tool, it is an interactive application. Access to the Pulse Check means you are taking it on behalf of/as an organization rather than receiving permission to view all of the questions.

A Racial Equity Impact Assessment (REIA) is a systematic examination of how different racial and ethnic groups will likely be affected by a proposed action or decision.

This brief provides an overview of the origins of racial hierarchy, distinguishes between biological concepts ofrace and socially defined race, reviews perspectives on the meanings and uses of race, and describes ongoing andpotential efforts to address prevailing misunderstandings about race and racism.

Minority and women researchers have more novel ideas, but they are less likely to be adopted by the scientific mainstream.

Taking the model from the American Alliance of Museums? guides for transgender inclusion, these toolkits provide a common framework for analysis, a shared vocabulary, and best practices to address racial disparities specific to the scholarly publishing community.

This article identifies where the technology and data sectors can contribute skills, expertise, and assets in support of innovative workforce models and augment the development of public health workforce competencies.

Use the Data Equity Framework to break up your data work into manageable parts and go through an intentional, equity-oriented process to make the key decisions along the way.

The current evaluation paradigm must shift and mindsets and practices evolve. The Equitable Evaluation Initiative’s Equitable Evaluation Framework provides principles and orthodoxies to guide organizations.

Using stories we collected from American Indian people who have experienced the results of racist policies, we describe historical trauma and its links to the health of American Indians and Alaska Natives.

In this episode, Dr. Brownsyne Tucker Edmonds and Dr. Sylk Sotto talk with Dr. Aaron Carroll about the importance of diversity and equity in research, higher education, and medicine.

This article summarizes some of the challenges around data sharing and reuse and identifies where the technology and data sectors can contribute to fill current gaps to promote interoperability and data stewardship.

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The report highlights major lessons from the Building Healthy Communities initiative that contribute knowledge to philanthropy and to the on-going racial justice and health equity movement in California and the nation

This Implementation Guidebook will help individuals, organizations, communities and First Nations in planning, implementing and evaluating the W.K. Kellogg Foundation’s Truth, Racial Healing & Transformation efforts.

As 14 Truth, Racial Healing & Transformation places approach the fourth year of implementation, these briefs offer a glimpse into the opportunities, nuances & complexities of implementing a community-based collaboration.

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In 2021, Fund for Shared Insight launched a participatory grantmaking initiative exploring power-sharing around the decisions funders make in supporting advocacy and policy work aimed at issues of climate change and environmental justice.

This article summarizes what data should be included and identifies where the technology and data sectors can contribute to fill current gaps to measure equity, positive health, and well-being.

This guidebook proposes an equity-based approach as a way to restore communities as the true authors and owners of research, and to shift the way researchers and funders work with community-based organizations to uncover knowledge together.