The resources below include materials, articles and research produced by organizations or individuals outside of the traditional commercial or academic publishing and distribution channels. Grey literature can include reports, theses, government documents, speeches, white papers, and more. Examples of publishers of grey literature may include government agencies, non-government organizations, and industry.
Title | Summary | Link | hf:doc_tags |
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“Beyond the Boxes” blog series from the Interdisciplinary Association for Population Health Sciences | This post is the final entry in our series about the use of race and ethnicity in population health research. Our previous posts have detailed information around defining, measuring, coding, and analyzing data on race and ethnicity. | data-equity data-quality diversity equity peer-review public-population-health research-design structural-racism | |
3 Principles for an Antiracist, Equitable State Response to COVID-19 – and a Stronger Recovery | For states to move toward antiracist, equitable, and inclusive policies that build an economic recovery that extends to all people, three principles should guide state policymakers in these equity efforts. | antiracist-methods equity political-determinants-of-health public-population-health social-determinants-of-health structural-racism | |
A Primer on Community Power, Place, and Structural Change | At the root of structural issues is powerlessness. This primer examines how health equity can be achieved through a community power-building approach to structural change. | community-driven-research health-equity political-determinants-of-health public-population-health social-justice | |
A Racial Equity Framework for Assessing Health Policy | The Racial Equity and Policy (REAP) framework provides a conceptually sound, empirically grounded basis for systematically assessing racial equity in health policy | analytic-tools health-equity impact-assessment political-determinants-of-health public-population-health structural-racism | |
Abigail Echo-Hawk on the art and science of ‘decolonizing data’ | The chief research officer of the Seattle Indian Health Board is creating programs and databases that are not based on Western concepts to better serve indigenous communities. | community-engagement community-driven-research data-equity data-governance decolonizing-methods public-population-health | |
Academic Incentives and Research Impact: Developing Reward and Recognition Systems to Better People’s Lives | This paper outlines new academic incentives at the system-, institution-, and person-level that, if implemented, could make proving societal impact an integral part of the research process. | academic-incentives hsr-workforce-development impact-assessment promotion-tenure research-funding research-governance systems-thinking translation-dissemination-implementation | |
Are Your Data Visualizations Racist? | To unlock the full potential of data, researchers and analysts must consider and apply equity at every step of the research process. Ensuring responsible data collection, representing the communities surveyed accurately, and incorporating community input whenever possible will lead to more equitable data analyses and visualizations. Although there is no one-size-fits-all approach to working with data, for researchers to truly do no harm, they must build their work on a foundation of empathy. This article details three ways you can make your data analysis and communication more equitable and inclusive. | data-equity data-visualization decolonizing-methods equity information-design structural-racism | |
Building a Better Evidence Base to Address the Social Determinants of Health | A recent literature review revealed most studies of social need interventions were poorly designed, inadequately documented, and inconsistently presented. In this post, Robert Dubois of the National Pharmaceutical Council, an AcademyHealth Organizational Member, outlines the state of the research and provides recommendations to improve study design quality. | data-quality human-centered-design-2 research-design social-determinants-of-health translation-dissemination-implementation | |
Charting a Course for an Equity-Centered Data System: Recommendations from the National Commission to Transform Public Health Data Systems | The Commission’s report and recommendations make it clear that in our current system, data on health inequities are divorced from the history and community conditions that shape poor health outcomes. | community-engagement data-democratization data-equity data-governance data-infrastructure data-quality data-sharing data-sources health-equity interoperability research-funding structural-racism translation-dissemination-implementation | |
Confronting Prejudice Isn’t Enoguh. We Must Eradicate the White Racial Frame | … | antiracist-methods storytelling systemic-racism | |
COVID-19 data on Native Americans is a “national disgrace.” This scientist is fighting to be counted | … | data-quality health-equity political-determinants-of-health | |
Digital Strategies to Create Mutual Benefit for Researchers And Research Participants | … | diversity improvement-science patient-centeredness returning-value sogie | |
Disabled Students Need Equity, Not Just Access | To challenge our personal & professional ableist biases & practices, we must reframe how we think about disability in higher education, & work not just for access but for equity & inclusion for disabled students. | accessibility disability equity social-determinants-of-health user-centered-design | |
Diversity, Equity, and Inclusion in Health Services and Policy Research: Recommendations to AcademyHealth from the Advisory Group on DEI in HSR | This publication presents the final recommendations of an external advisory group AcademyHealth convened to help shape a sustainable, action-oriented strategy to address diversity, equity, & inclusion in the field | antiracist-methods career-advancement data-equity data-quality data-sharing equity hsr-workforce-development organizational-change promotion-tenure research-funding structural-racism translation-dissemination-implementation workforce-diversity | |
Do No Harm Guide: Additional Perspectives on Data Equity | For this follow-up volume, Do No Harm Guide: Additional Perspectives on Data Equity, we handed the pen to data experts and practitioners whose voices have been traditionally underrepresented. | antiracist-methods community-engagement community-based-participatory-research data-equity data-governance data-quality data-sharing data-visualization decolonizing-methods diversity equity health-equity information-design public-population-health research-design research-funding research-governance social-justice structural-racism translation-dissemination-implementation | |
Do No Harm Guide: Applying Equity Awareness in Data Visualization | In this guide and its associated toolkits, we focus on how data practitioners can approach their work through a lens of diversity, equity, and inclusion to encourage thoughtfulness in how analysts work with and present their data. | antiracist-methods community-engagement data-equity data-quality data-visualization diversity equity ethics-review intersectionality research-design structural-racism user-centered-design | |
Equity and Evaluation: Models of How Equity Can and Does Impact Evaluation | The philanthropic & nonprofit fields, organizations & individuals have shown an increasing focus on equity. This booklet shares five scenarios around equity in which we?ve had to clarify our role & form an appropriate response. | community-engagement equity mixed-methods research-design research-funding | |
Health Disparities at the Intersection of Disability and Gender Identity: A Framework and Literature Review | This article examines the health disparities experienced by transgender people with disabilities. It analyzes the prevalence and types of disabilities among transgender people, examines the health outcomes and social determinants of health among this intersectional population, and makes recommendations for areas of future research. | analytic-tools disability health-equity human-centered-design-2 intersectionality public-population-health social-determinants-of-health | |
Healthy People, Healthy States: Promising Practices to Address Health Disparities | This resource is intended to provide state policymakers with a suite of state approaches to address health disparities ? from targeted to cross-agency comprehensive strategies. Each section below comprises best practices and state | accessibility community-engagement data-sharing decolonizing-methods digital-health human-centered-design-2 innovation learning-health-systems patient-centeredness predictive-analytics-and-modeling public-population-health social-determinants-of-health | |
How Can We Make Data Science Even More Valuable | In this issue we have some articles that instead attempt to tackle some of the fundamental philosophical challenges of data science | artificial-intelligence big-data data-democratization data-quality data-science data-sources data-visualization digital-health improvement-science machine-learning patient-privacy | |
Innovating in the Research Funding Process: Peer Review Alternatives and Adaptations | Lotteries, self-review, open peer review, innovation prizes, and other approaches have emerged as potential research funding process alternatives, but each of these options comes with its own advantages and disadvantages. | hsr-workforce-development innovation patient-consumer-engagement peer-review research-funding translation-dissemination-implementation | |
Invisible Disabilities in Education and Employment | … | accessibility disability hsr-workforce-development | |
Lessons and Implications from Case Studies on Diversity, Equity, and Inclusion Interventions | This Horizon Scan provides an overview of existing DEI programs and practices to ultimately stimulate conversations and action that can advance DEI within health services and policy research. | academic-incentives career-advancement community-based-participatory-research data-sources equity hsr-workforce-development intersectionality organizational-change promotion-tenure structural-racism translation-dissemination-implementation workforce-diversity | |
Measuring Sex, Gender Identity, and Sexual Orientation | Examines the measurement of sex, gender identity, & sexual orientation to produce recommendations for specific measures that can be used in surveys & research, administrative, clinical, & other health settings. | analytic-tools data-governance data-quality data-sharing health-equity political-determinants-of-health translation-dissemination-implementation | |
Measuring Structural Racism: A Guide for Epidemiologists and Other Health Researchers | The goal of this commentary is to inspire the use of up-to-date and theoretically driven approaches to increase discourse among public health researchers on capturing racism as well as to improve evidence of its role as the fundamental cause of racial health inequities. | analytic-tools antiracist-methods data-equity health-equity intersectionality mixed-methods research-design social-determinants-of-health structural-racism | |
On Racism: A New Standard for Publishing On Racial Health Inequities | Despite racism?s alarming impact on health and the wealth of scholarship that outlines its ill effects, preeminent scholars and the journals that publish them routinely fail to interrogate racism as a critical driver of racial health inequities. | academic-incentives analytic-tools antiracist-methods ethics-review health-equity hsr-workforce-development intersectionality peer-review political-determinants-of-health public-population-health research-design social-determinants-of-health structural-racism translation-dissemination-implementation | |
Preprints Make Research More Accessible, But Use Among Health Services Researchers is Low | Until recently, there were no preprint servers for medical and health sciences. In this post, Harlan Krumholz and Joseph Ross, co-founders of medRxiv, describe the benefits of preprints and highlight features of their preprint server for health sciences launched in June 2019. | innovation open-science peer-review preprint translation-dissemination-implementation | |
Principles for Advancing Equitable Data Practice | This brief introduces the Belmont Report?s principles and provides selected principle-aligned practices and resources to help data experts at all levels integrate the principles into their work and move toward more equitable data practice. | community-engagement data-equity data-quality data-sharing data-sources ethics-review open-access research-governance translation-dissemination-implementation | |
Recommendations from the National Commission to Transform Public Health Data Systems | The Commission’s report and recommendations make it clear that in our current system, data on health inequities are divorced from the history and community conditions that shape poor health outcomes. | community-engagement data-equity data-infrastructure data-quality data-sharing data-sources health-equity open-science patient-consumer-engagement public-population-health structural-racism | |
Science’s Diversity Problem | Minority and women researchers have more novel ideas, but they are less likely to be adopted by the scientific mainstream. | diversity equity innovation promotion-tenure | |
The Ethics of AI in Biomedical Research, Patient Care and Public Health | Our aim is to lay the groundwork for an ethically responsible development of AI in the domains of health research, clinical practice and public health. | artificial-intelligence big-data data-governance data-quality data-sharing digital-health ethics-review machine-learning patient-centeredness person-generated-health-data predictive-analytics-and-modeling public-population-health real-world-evidence remote-monitoring research-design | |
The Field Of Health Services Research: Time To Change Its Paradigm | How can health services research better ensure that high-value health care is consistently and affordably provided to different people, communities, and populations? That?s a fundamental question that this sector must answer if it?s to remain viable. | hsr-workforce-development human-centered-design-2 innovation translation-dissemination-implementation | |
The Reporting of Race and Ethnicity in Medical and Science Journals | … | data-equity equity research-governance | |
Tips for Pitching Research to the Media | Dan Gorenstein, host and executive producer of the national health policy podcast Tradeoffs, highlights ways health policy researchers and academics can share their work with reporters. | hsr-workforce-development translation-dissemination-implementation | |
Toward Health and Racial Equity: Findings and Lessons from Building Healthy Communities | The report highlights major lessons from the Building Healthy Communities initiative that contribute knowledge to philanthropy and to the on-going racial justice and health equity movement in California and the nation | analytic-tools community-engagement health-equity social-determinants-of-health social-justice structural-racism | |
Truth, Racial Healing & Transformation: Resources & Lessons from Three Years of Community Collaboration | As 14 Truth, Racial Healing & Transformation places approach the fourth year of implementation, these briefs offer a glimpse into the opportunities, nuances & complexities of implementing a community-based collaboration. | analytic-tools antiracist-methods community-engagement engagement-science equity implementation-science political-determinants-of-health research-governance social-determinants-of-health social-justice structural-racism team-science translation-dissemination-implementation | |
Uncovering and Removing Data Bias in Healthcare | … | artificial-intelligence data-quality data-science diversity health-equity public-population-health | |
What’s Next for Open Science – Making the Case for Open Methods | What we?re realizing as a community, is that we?re leaving an enormous amount of value on the table, and that if we can do a better job of capturing, preserving, and making available more of the research workflow, we?ll drive better transparency and reliability of the research conclusions, and improve efficiency and the return on the investment we make in research funding. | data-infrastructure data-quality open-access open-science | |
Why Diverse Teams Outperform Homogenous Teams | … | hsr-workforce-development workforce-diversity |